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Hello, I'm a 17 Year Old Web Developer and Student. I suffer from CRPS, FND and NEAD.

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About Me - Who Am I?

Hello, My Name is Jack Puttock; a 17 year old Front End Web Developer and Student from Cambridgeshire, United Kingdom. In February 2019, I had an injury to my right arm whilst attending school and thought nothing of it (as most people do with many injuries, the pain was generally quite bad but because I had just injured it I was expecting that). But the pain continued to increase, my arm because increasingly hard to move, and I have severe inflammation of my ulna. As time went on and I spent time in and out of hospital as they tried to diagnose what was happening (as there was no broken bones, they questioned ligament damage) and I was bounced between departments and was told there was nothing wrong with me… This was until I saw a specialist in the Plastic Surgery department and the idea of CRPS was discussed, but a formal diagnosis was only made in August 2019; after months of excruciating pain. I was then referred to Addenbrookes Hospital in Cambridge to their Pain Clinic, and have a team of friendly and caring people that are trying everything they can to ensure I have the best care. Around the end of my GCSE exams (June 2019), I began having seizures, which were extremely scary and were unexplained by the multiple emergency visits to A&E. Only this month (November 2019) was I diagnosed with FND, and NEAD which fits all of my other symptoms. This blog was created to document my experience with the most painful chronic condition that is known (Referencing the MCGill Pain Index), how it affects my day to day life and trying to raise awareness to the people in society who don’t know what the condition is or properly understand it.

Recent Posts

Surgery #01

An update on my first surgery for my CRPS treatment.

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One Year On

After a Year of having CRPS I reflect on my experience with my condition(s).

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One Day at a Time

Introduction on how I got CRPS and how it affected my life, and how I felt when I recieved the diagnosis. Closing remarks for 2019.

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Frequently Asked Questions

Complex regional pain syndrome (CRPS) is a form of chronic pain that usually affects an arm or a leg. CRPS typically develops after an injury, a surgery, a stroke or a heart attack. The pain is out of proportion to the severity of the initial injury.
For most patients, the symptoms of CRPS are swelling, warmth, and redness of skin, sweating around the affected area, shiny and tender skin, and a throbbing pain. The most important sign of CRPS is the lack of any other possible causes for those symptoms.
According to the McGill Pain Index, a method used to measure pain since 1971, CRPS is the worst chronic pain a person can experience. It scores between a 42 and 45 out of a total possible 50. To put this in perspective, first time childbirth ranks at roughly 35 to 40, and a fracture ranks at around 17.
CRPS, if not treated as soon as diagnosed, can and almost certainly will spread. In fact, over 70% of CRPS cases include the spreading of the afflicted area beyond the initial site of injury.
Excessive sweating is a common sign of CRPS, along with shiny and tender skin. The affected area will often feel overly warm, and measuring sweat is one way to diagnose CRPS.
There is no cure for CRPS. You will have the disorder for the rest of your life. However, it is possible (though rare) for CRPS to go into remission and for the symptoms to abate, at least for some period of time. There are also treatments available to help sufferers cope with the pain and live a normal lifestyle.
There are drugs and medications that are prescribed as treatments for CRPS. These include antidepressants, anti-inflammatory drugs, and most opioids.
There are many different types of physical therapy that have been used to treat sufferers of CRPS, including massages, contrast baths, weight progression exercises, and more. Another effective form of treatment is the use of spinal cord stimulation. This involves attaching electrodes to the spinal cord at the places which relate to the affected limbs or extremities.
CRPS is not a growth that can be removed like cancer. The condition affects the bones, muscles, nerves, and other tissue in the affected area. The painful limb can be amputated, and this may be necessary in cases of muscle atrophy. Some sufferers have the affected limb amputated in an attempt to eliminate the pain, but there is not enough research on the subject to determine whether or not this is effective.